Pacing Purgatory

Some days there’s no other description for what Dr. Myhill has tagged “pacing” … an essential component of the CFS/ME daily survival reality. Along with a ridiculously long list of supplements I can’t do without, there’s this lil thing called pacing. It can often be described as purgatory. Some docs say a CFSer should rest 3 minutes for every 1 minute of activity. O.o That leaves no time for an actual life and makes a ton of sense if you’re in the worst of the CFS badlands. Fortunately, I’m not there. But, I’ve been close to the edge of that horrible wasteland and have had to up the pacing realities. So, what does it mean? It means I’m up and working for a few hours and then on the couch with the laptop. Or without it, flat on my back staring out at the trees and sunshine. Or I’m in a chair under those trees. Last week, I went bowling with my daughter on her birthday. I was described as graceful and fluid in motion. But. What did it feel like? My knees almost buckled 3 times. My upper body was screaming, my back howling and my legs literally shaking. How do you hide this? You sit down as soon as you’ve taken your turn.  You breathe deeply, sip at the water you brought and refuse to panic.

Seriously.

The result? 3 days on the couch with occasional outbursts of here and thereness, popping Ibuprofen (it’s against my nutrition religion to do that but i do it when desperate), rubbing magnesium oil on the pain-filled limbs and riding the wave of agony.

Put this in perspective. What kind of person am I? The running/sprinting, take me to the river, up the mountain, down the beach and to the bowling alley, down the bike trail type. Oh and there are the random dance fests. I miss it all. And I have not had the chance to really fully cultivate who I am outside of this purgatory, when things weren’t as bad as they’ve been for this almost 6 year stretch. Why? Because this “syndrome” (insert expletives here) has been part of my life since my early 20s. That’s 20++ years.

So. How does someone in purgatory find the meaningfulness in it all? Well…there’s this river perpetually flowing beneath the surface of every moment, and under trees and in the breezes blowing by, in the conversations filled with heart and soul, baring vulnerability and frustration, joy and longing. We’re here for these pleasures, and for the honor of meeting the challenges love tosses our way from time to time. But some times only a raging ranting session of frustration venting proportions will do. Pacing the emotions…pacing the body…corralling the longing into deeper appreciation for everything from birdsong to treespeak to…

 

Grounded Earthy Good

Along the same lines of the previous post, we have grounding or earthing…

“Your body is a conductor. You are an antenna for the Earth. When you are ungrounded, electric fields are attracted to your body and create a surface charge—a voltage. You know this to be true if you’ve ever shocked yourself after walking across a carpeted floor.

When living above Earth, your charge is positive; when connected to the Earth, your charge is negative—in other words, you become an opposite charge. You accumulate this surface charge any time you’re not grounded. When your charge reaches 3,000 to 5,000 volts and you touch a metal object, ZAP… this is static discharge, the sudden outflow of built-up electrical energy from your body.

This static electricity is the reason workers in microchip factories must be grounded—so they don’t blow the chips. The same goes for operating rooms. Everyone involved in a surgical procedure must be grounded—the patient as well as the medical personnel. Your skin offers some protection from static electricity, but when it’s open (as in surgery), that protection disappears. In fact, in the early days of open-heart surgery, this lesson was learned the hard way when many patients died from static electricity because patients weren’t grounded.

The higher the conductivity between you and the Earth, the more likely you’re going to be grounded. Proximity is key.” Dr. Joseph Mercola

Proximity. In other words…get your feet naked and on the ground. And there are some great products for when you can’t do that. New things for my wellness wish list!

Related Link Here

Cellular Magnesium

A few things to know…

“Salt lowers cellular magnesium.

Glucose lowers cellular magnesium.

Pregnancy lowers cellular magnesium (especially if pregnancy is complicated by diabetes).

Aging lowers cellular magnesium.

Insulin temporarily raises blood magnesium, but it causes increased magnesium loss through the urine, ultimately leading to a lowering of cellular magnesium and increase in cellular calcium.” From The Magnesium Factor – Mildred Seelig, M.D., Andrea Rosanoff, Ph.D.

Also…

Dr. Sarah Myhill recommends magnesium be taken by injection when the body is severely depleted, which is usually the case with CFS/M.E. and, if injection is not available, via nebuliser (this is my new planned approach!). Typical blood tests might not necessarily reveal whether your body is severely depleted.

Another great source for magnesium? There’s also the great magnesium oil alternatives putting it directly on the skin and into the system via absorption.

Krill Oil for the Brain

Krill oil’s a must…

“When your omega-3 intake is inadequate, your nerve cells become stiff and more prone to inflammation as the missing omega-3 fats are substituted with cholesterol and omega-6 instead. Once your nerve cells become rigid and inflamed, proper neurotransmission from cell to cell and within cells become compromised.

It’s thought that the unsaturated fatty acid composition of normal brain tissue is age-specific, which could imply that the older you get, the greater your need for animal-based omega-3 fat to prevent mental decline and brain degeneration.5

For example, low DHA levels have been linked to memory loss and Alzheimer’s disease, and research suggests degenerative conditions can not only be prevented but also potentially reversed. For example, in one study, 485 elderly volunteers suffering from memory deficits saw significant improvement after taking 900 mg of DHA per day for 24 weeks, compared with controls.6

Another study found significant improvement in verbal fluency scores after taking 800 mg of DHA per day for four months compared with placebo.7 Furthermore, memory and rate of learning were significantly improved when DHA was combined with 12 mg of lutein per day.” Dr. Mercola

Related Link Here.

 

Acid Stomach

The popular solutions provided by the healthcare community aren’t exactly optimum. Look at what Dr. Christiane Northrup has to say about it:

“Acid indigestion, also known as reflux or heartburn, occurs when your stomach acids back up into the esophagus. The standard treatment is prescribing a proton pump inhibitor to keep the stomach from producing any acid or popping an antacid to reduce symptoms. Proton pump inhibitors are used to treat ulcers, too. The problem is that your stomach acids help balance the bacterial growth in the gut. Too little acid can result in too much bacteria, which can lead to yeast overgrowth (infection) throughout the body, as well as gas and bloating.  This condition is largely the result of a highly-refined food diet, which is converted into high blood sugar too quickly.

Your body also needs stomach acids to break down minerals, including calcium, magnesium, and iron. Insufficient stomach acid can lead to deficiencies in these minerals as well as in vitamin B-12. It’s not uncommon for women to develop low bone mineral density (osteopenia) if they take acid blockers for long periods of time.”

Related Link Here.

Gut Facts

Goodies from Dr. Christiane Northrup

“The lining in your gut is actually part of your immune system. In fact, it’s your first line of defense against bugs and other organisms that can make you ill. For millennia, this immune mechanism was needed for the survival of the species. Humans lived without refrigeration and didn’t always know enough to practice safe food handling. When your gut is healthy, it keeps any foreign invaders in food from getting into the bloodstream. It also protects you from airborne viruses and bacteria.”

We lived WITHOUT refrigeration. We know this but do we ever really THINK it through?

Kombucha Tea

Kombucha tea is a must for me. My favorite brand is Synergy’s Cherry Chia and it packs a great sustaining energy punch. So what is Kombucha tea? Check the quote below…

“The kombucha, or Manchurian, “mushroom” has reputedly been used in Asian countries and in Russia for centuries. The “mushroom” itself is not eaten. Rather, a tea is made by fermenting the “mushroom” for about a week in a mixture of water, sugar, and green or black tea, with apple cider vinegar or a bit of previously made tea added. Kept in this mixture, the “mushroom” reproduces and the “daughter mushrooms” can then be used to produce more tea.

Although commonly referred to as a mushroom, the kombucha is actually a combination of a number of different elements, including lichen, bacteria, and yeast. Kombucha tea contains a variety of different nutrients and other health-promoting substances. It is a natural energy booster and detoxifier that may also help slow or reverse the aging process and fight such serious diseases as AIDS, cancer, and multiple sclerosis.” from Prescription for Nutritional Healing by Phyllis A. Balch and James F. Balch

When I first realized that sugar is used in the fermentation process (duh) I was pretty upset. But it’s not enough to move this into a high glycemic ranking. Great stuff if you get the right mix!

Fat Burning

Dr. Rosedale has some great input on fat and fat burning…

“The energy source we want our bodies to rely on is fat. Our diet is much higher in fat than most diets prescribed today. Unfortunately, many people have a media ― or medical-induced fear of fat. This fear is misguided because society currently lumps fat into one dangerous category without looking at fats for their individual properties. While we are working on spreading the word, it is not yet common knowledge that certain fats in the right amount are good for you.

The fat we recommend you eat differs qualitatively from the usual fare of vegetable oils. Those foods usually contain damaging fats.  We recommend only what we consider “good” fats.

Remember that fat has always been and always will be essential for life. We need fat to nourish our immune system, nervous system, hormonal system, for skin integrity, to control inflammatory processes and don’t forget, to burn for energy.

Some examples of “good” fats include: raw nuts such as almonds, walnuts, pecans, pine and macadamia, olives and olive oil and especially coconut oil and ghee. Fish, cod liver, and flax oil are great to supplement with but should not be used in cooked foods.”

Read more: http://drrosedale.com/healthplan.htm#ixzz2RCVyTtOP

The Wellness Quest…

Journeys of wholeness for the mind/body/soul don’t begin instantly for most of us. Most of us become more aware as a result of a life challenge. Then our journey begins, whether we recognize it as a journey or not. For my own story it began with low blood sugar struggles and resulting mood shifts and whole cataclysmic events altering my idea of just how much control I have over my life. And how much I don’t have. As it turns out, we all have far more control than we realize. And the more we learn, the better equipped we are to improve our lives on every level: mind/body/soul.

In my late teens and early 20’s, the struggle with low blood sugar or hypoglycemia evolved into an awareness of alternative eating styles and a keen interest in metabolism. I also had some experience with the effects of Vitamin B deficiency and resulting energy loss as well as devastating depression. Then came the bout with pneumonia in my early 20’s, changing my health forever. I was never the same. The gal who could easily get up at 5:30a.m. to go walking 3 miles, hop on a bike for long stretches of time and catapult herself up flights of stairs faded into a fever-haunted, energy-drained mess of body aches and often excruciating fatigue – to name but a few of the realities of what was unofficially (by my doctor at the time who had zero respect for the illness) diagnosed as Chronic Fatigue Syndrome. It was the early 90’s and I was lost.

But the research eventually commenced and I learned much about taking my health into my own hands. I went through the usual tortures of those seeking spiritual as well as physical transformation, combing over my inner world to see what toxic beliefs I possessed that might result in low blood sugar, CFS and overall malaise. I grew by leaps and bounds as a result. But CFS never left.

I have concluded that while it is likely true that illness begins in the soul, there are many who are ill of soul yet sound of body. Life simply isn’t fair. As a result of this observation, I continue to seek out soulful and spiritual channels of transformation and wholeness while holding firmly to a faith in solid knowledge of the body. I lean more towards the belief that our illnesses are usually a result of environmental stressors and genetic predisposition, some of which can be healed through sound wellness practices. I find it somewhat arrogant when encountering the “experts” who have never been plagued with disease or chronic illness declaring the problem is in the spirit or soul. Again, there are so many who are sick, twisted, believing the most toxic things about themselves as they leap on their bikes or run their annual 5k. It just doesn’t fit the premise, does it? But I remain somewhat open to the possibility.

So, if you’re up for the journey, enjoy The Wellness Quest and be careful not to guru my posts with pontifications of grand spiritual cures or I’ll likely pass you a heavy dose of reality. I subscribe to a rational faith married to a bit of mystical whimsy which produces these beautiful ACTIONS towards wellness. Beyond that, I truly pray for healing for all who suffer any form of illness or disability.

Be well…