Acetyl L-Carnitine

…to the rescue…

Here’s why CFS/ME sufferers need to keep this one in their daily supplement routine:

“Carnitine is the carrier molecule that takes fuel in the form of acetate groups from the cell across mitochondrial membranes where it is needed to fuel energy production by Kreb’s citric acid cycle and oxidative phosphorylation. Acetate groups in the cell bind to carninine to form acetyl L-carnitine, which can then pass through the mitchondrial membrane. The acetate groups is then given up and L-carnitine passes back through the mitochondrial membrane into the cell in order to pick up another molecule of acetate. Using the car analogy, carnitine is like the nozzle on the fuel pump that delivers fuel into the tank of your tank of your car where it is needed.

Carnitine can be made in both the liver and the kidney from cysteine and methionine (both amino acids in animal protein) and requires iron and vitamin C for its synthesis. In muscle meats L-carnitine makes up 0.1% of dry matter. There is very little carnitine in plant derived foods, which may partly explain why vegetarianism seems to be a risk factor for chronic fatigue.

A typical sort of dose to treat problems associated with poor mitochondrial function is 2 grams a day. Studies have shown it is highly effective in ischaemic heart disease. It has also been trialled in the treatment of chronic fatigue syndrome…” Dr. Sarah Myhill

Related Link Here

I take 2 grams a day WITH r-lipoic acid (this is what the body creates FROM alpha lipoic acid) in order to optimize their benefit. Ratio of 1:1. It’s an energy revolution when I’m careful not to overdo the activity. I consider these 2 supplements a daily must.

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Pacing Purgatory

Some days there’s no other description for what Dr. Myhill has tagged “pacing” … an essential component of the CFS/ME daily survival reality. Along with a ridiculously long list of supplements I can’t do without, there’s this lil thing called pacing. It can often be described as purgatory. Some docs say a CFSer should rest 3 minutes for every 1 minute of activity. O.o That leaves no time for an actual life and makes a ton of sense if you’re in the worst of the CFS badlands. Fortunately, I’m not there. But, I’ve been close to the edge of that horrible wasteland and have had to up the pacing realities. So, what does it mean? It means I’m up and working for a few hours and then on the couch with the laptop. Or without it, flat on my back staring out at the trees and sunshine. Or I’m in a chair under those trees. Last week, I went bowling with my daughter on her birthday. I was described as graceful and fluid in motion. But. What did it feel like? My knees almost buckled 3 times. My upper body was screaming, my back howling and my legs literally shaking. How do you hide this? You sit down as soon as you’ve taken your turn. ¬†You breathe deeply, sip at the water you brought and refuse to panic.

Seriously.

The result? 3 days on the couch with occasional outbursts of here and thereness, popping Ibuprofen (it’s against my nutrition religion to do that but i do it when desperate), rubbing magnesium oil on the pain-filled limbs and riding the wave of agony.

Put this in perspective. What kind of person am I? The running/sprinting, take me to the river, up the mountain, down the beach and to the bowling alley, down the bike trail type. Oh and there are the random dance fests. I miss it all. And I have not had the chance to really fully cultivate who I am outside of this purgatory, when things weren’t as bad as they’ve been for this almost 6 year stretch. Why? Because this “syndrome” (insert expletives here) has been part of my life since my early 20s. That’s 20++ years.

So. How does someone in purgatory find the meaningfulness in it all? Well…there’s this river perpetually flowing beneath the surface of every moment, and under trees and in the breezes blowing by, in the conversations filled with heart and soul, baring vulnerability and frustration, joy and longing. We’re here for these pleasures, and for the honor of meeting the challenges love tosses our way from time to time. But some times only a raging ranting session of frustration venting proportions will do. Pacing the emotions…pacing the body…corralling the longing into deeper appreciation for everything from birdsong to treespeak to…

 

Olive Leaf Extract

I can’t not take Olive Leaf Extract and here’s part of the reason why:

“Olive leaf extract is an herbal supplement that has been shown to be effective against virtually all the viruses and bacteria on which it has been tested. Laboratory studies suggest that olive leaf extract interferes with viral infection becoming established and/or spreading, either by rendering viruses incapable of infecting cells or by preventing them from reproducing…It is useful for such disorders as pneumonia, sore throat, sinusitis, and skin diseases such as chronic infections and rashes, as well as fungal and bacterial infections.” from Prescription for Nutritional Healing, 3rd Edition – Phyllis A. Balch, CNC & James F. Balch, M.D.

What this quote doesn’t tell you is that it’s a major energy boost!

CFS Symptoms In Muscles

“If the blood supply to muscles is impaired, then muscles quickly run out of oxygen when one starts to exercise. With no oxygen in the muscles the cells switch over to anaerobic metabolism, which produces lactic acid and it is this that makes muscles ache so much.

As well as the above problem, muscles in the CFS patient have very poor stamina because the mitochondria which supply them with energy are malfunctioning.”

Dr. Sarah Myhill