I rode the wave of energy granted me by some amazing supplements and thought myself free of the end-of-summer smashery but, it wasn’t to be. The problem with CFS/ME and riding the wave of energy that comes along is the inevitable payment made down the road. Instead of pacing, I gorged on activity. And the smash prevailed. But the good news? It’s none of it nearly as devastating (can’t call it devastating, in fact) as it has been in the past. When recovery is well underway, setbacks take on milder and milder hues of frustration – as long as the supplements are continuously available.
These supplements are now at the top of my absolute must list:
Virasyl (Shilajit and Humic Acid)
R Lipoic Acid
Magnesium (topical and oral)
Olive Leaf Extract
And a ton of amino acids. And other basics.
One of the many frustrating realities of CFS is the recurrence of headaches. It’s not something I typically mention if anyone asks “what are the symptoms?” But there it is. Sometimes pounding my head for weeks. I can also go for years with the occasional headache. It’s one of those intermittent (meaning months on/off) realities. As an example: this past Saturday I went around all day feeling like someone had stuck a knife in my right temple. Throbbing horror. But I kept moving. Went to my daughter’s 18th birthday party, the second one and less focused on family. All I had to do was show up, thankfully. Teens, noise and non-stop activity. Headache’s worst scenario. By the time I got home all I could do was crawl in bed. Slowly. Carefully. I use transdermal magnesium nightly. It’s becoming quite a revolution for my CFS story, once again. (I had a magnesium flush-injection while pregnant 18 years ago and my CFS symptoms almost totally disappeared for a number of years.) I had done my usual routine with the magnesium oil but more liberally applied it to my body with high hopes for relief from all the other CFS realities I live with daily. But I was tossing and turning, the knife in my head keeping me awake. Finally, it occurred to me to put some of the magnesium directly on the “knife” in my head. Within minutes I passed out, the pain fading. I haven’t gone without this pain for 2 weeks. I might catch a break for a few hours in the morning but by noon or 2pm my head is pounding.
2 days now. Zero pain. As it turns out I’m not alone in this experience. Magnesium “oil” saves the day for quite a few headache sufferers.
Here’s my current recommendation for the best product: http://www.ancient-minerals.com/products/magnesium-oil/
CFS/ME sufferers need to realize magnesium is essential to the production of ATP and this is pivotal to our recovery during times of reactivation. For CFS newbies this means those times CFS has flared up and taken over your life on significant levels.
As a result of that evening of dousing myself (drowning, more like) in the magnesium oil, I was able to go walking along NC’s Deep River with my sister. Two days of significant activity for a CFS veteran is risky business sometimes, especially while in recovery. I awakened today to no headache, no fatigue horror and no major pain.
Here’s to more magnesium and more living…
j. ruth kelly, all rights reserved, 2013
I keep meaning to put the F.D.A. on my black list here. Here’s one of the countless reasons why:
“Did you know that if a supplement company “Likes” a customer’s Facebook post, it magically transforms nutritional supplements into drugs? The same thing happens if a supplement’s website links to a scientific article!
As recently as this week, the FDA has made attacks like these to expand the agency’s definition of “disease claim.” Why? By saying a supplement makes a disease claim, the FDA can call it a “drug”—and then remove it from the market!”
This is a quote from The Alliance for Natural Health.
Related Link Here
…to the rescue…
Here’s why CFS/ME sufferers need to keep this one in their daily supplement routine:
“Carnitine is the carrier molecule that takes fuel in the form of acetate groups from the cell across mitochondrial membranes where it is needed to fuel energy production by Kreb’s citric acid cycle and oxidative phosphorylation. Acetate groups in the cell bind to carninine to form acetyl L-carnitine, which can then pass through the mitchondrial membrane. The acetate groups is then given up and L-carnitine passes back through the mitochondrial membrane into the cell in order to pick up another molecule of acetate. Using the car analogy, carnitine is like the nozzle on the fuel pump that delivers fuel into the tank of your tank of your car where it is needed.
Carnitine can be made in both the liver and the kidney from cysteine and methionine (both amino acids in animal protein) and requires iron and vitamin C for its synthesis. In muscle meats L-carnitine makes up 0.1% of dry matter. There is very little carnitine in plant derived foods, which may partly explain why vegetarianism seems to be a risk factor for chronic fatigue.
A typical sort of dose to treat problems associated with poor mitochondrial function is 2 grams a day. Studies have shown it is highly effective in ischaemic heart disease. It has also been trialled in the treatment of chronic fatigue syndrome…” Dr. Sarah Myhill
Related Link Here
I take 2 grams a day WITH r-lipoic acid (this is what the body creates FROM alpha lipoic acid) in order to optimize their benefit. Ratio of 1:1. It’s an energy revolution when I’m careful not to overdo the activity. I consider these 2 supplements a daily must.
A few things to know…
“Salt lowers cellular magnesium.
Glucose lowers cellular magnesium.
Pregnancy lowers cellular magnesium (especially if pregnancy is complicated by diabetes).
Aging lowers cellular magnesium.
Insulin temporarily raises blood magnesium, but it causes increased magnesium loss through the urine, ultimately leading to a lowering of cellular magnesium and increase in cellular calcium.” From The Magnesium Factor – Mildred Seelig, M.D., Andrea Rosanoff, Ph.D.
Dr. Sarah Myhill recommends magnesium be taken by injection when the body is severely depleted, which is usually the case with CFS/M.E. and, if injection is not available, via nebuliser (this is my new planned approach!). Typical blood tests might not necessarily reveal whether your body is severely depleted.
Another great source for magnesium? There’s also the great magnesium oil alternatives putting it directly on the skin and into the system via absorption.